![]() ![]() People with Ocular Albinism should be tested by an ophthalmologist annually. However, changes to indoor lighting can help someone with OA to see better. Sunglasses, transition lenses, or special filter glasses can relieve hypersensitivity to light, although they may reduce visual acuity when worn indoors. Some also find handheld magnifiers to be very helpful. Glasses and contact lenses can help sharpen vision for people with OA. Indeed, many resources are available for people with OA, including vision correcting devices, support groups, and low vision aids. While Ocular Albinism may presently be incurable, that doesn’t mean that patients can’t lead happy, healthy lives. Its effect can be from anywhere mild vision changes to complete loss of vision. These are rare but serious disorders that include albinism. These symptoms may be a result of Hermansky-Pudlak syndrome or Chediak-Higashi syndrome. If you have a child with albinism that experiences frequent nosebleeds, easy bruising, or chronic infections, you should contact your doctor. Permanent vision loss is also possible for individuals with Ocular Albinism, but the symptoms do not worsen over time. However, blood vessels inside the eyes may be visible through the pale iris, making them seem pink or red. Most people with Ocular Albinism have blue eyes. Since albinism prevents the body from making enough melanin, the chemical that gives skin, hair, and eyes its color, the physical appearance of eyes is also affected. Many people with this condition experience hypersensitivity to bright light and glare, a condition known as photophobia. Ocular Albinism can also cause strabismus, commonly known as crossed or “lazy” eyes. The inability of the eyes to move in unison or stay directed on the same point.Head movements, such as tilting or bobbing the head, usually as an effort to reduce nystagmus and to see better.Rapid, back-and-forth eye movements, known as nystagmus.Vision impairment, such as extreme nearsightedness or farsightedness.In addition, adults may have trouble driving and performing activities that involve complex hand-eye movements. For example, poor vision can interfere with a children’s ability to participate at school and in sports. Reduced visual acuity can cause a variety of challenges, especially for children. This results in blurry vision as the nerves behind the eyes cannot transmit a clear image to the brain. Due to the underdevelopment of the retina, people with OA most commonly present with poor sharpness of vision (visual acuity). Ocular Albinism affects the retina and the nerves behind the eyes. ![]()
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